Research report

Heart work: A thematic analysis of compassion in long-term care

This research brief explores perceptions about compassion when delivering palliative care from the perspective of residents, family members, and healthcare providers in LTC. It identifies potential facilitators and barriers associated with providing compassionate care to residences in Canadian LTC settings.

Meaningful connections in dementia end of life care in long term care homes

The purpose of this study is to examine and compare family and staff perspectives on end-of life (EOL) care for people with dementia, as well as their family caregivers, who live in long-term care (LTC) homes. This study explored how EOL care is currently being provided to those with dementia, what facilitates the provision of care, and what challenges are experienced by staff and family caregivers.

“Now I don’t have to guess”: Using Pamphlets to encourage residents and families/friends to engage in advance care planning in long-term care

Advance care planning (ACP) helps individuals with progressive, life-limiting illnesses communicate their preferences for end-of-life (EOL) care to family members and healthcare providers. Despite known benefits, ACP is rarely utilized in LTC settings. To address the barriers of ACP in LTC, our team developed, implemented, and evaluated the effects of disease-specific illness trajectory pamphlets (ITPs) for five life-limiting advanced clinical syndromes of high prevalence in LTC: dementia, heart failure, COPD, renal failure, and frailty.

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