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This research seeks to understand various perspectives on dying alone and why it is construed as a ‘bad death,' as well as to explore the EOL care and bereavement needs of family members of residents who recently died in a LTC home.

Resource Type: Research report
Roles: Family/Caregiver Healthcare Provider

The purpose of this study is to examine and compare family and staff perspectives on end-of life (EOL) care for people with dementia, as well as their family caregivers, who live in long-term care (LTC) homes. This study explored how EOL care is currently being provided to those with dementia, what facilitates the provision of care, and what challenges are experienced by staff and family caregivers.

Resource Type: Research report
Roles: Family/Caregiver Healthcare Provider
Topics: Better communication Symptom management

CONFÉRENCE POUR LES PROCHES AIDANTS LISTE DE QUESTIONS INCITATIVES Après avoir examiné le Guide de soins de confort, vous aurez peut-être des questions à poser lors de la Conférence pour les proches aidants qui suivra. Cochez les questions ci-dessous que vous souhaiteriez poser et n’hésitez pas à noter vos propres questions dans le Questionnaire du proche aidant principal ci-inclus avant la conférence.

Resource Types: Clinical form/process Informational Print Resource
Roles: Family/Caregiver Healthcare Provider
Toolkit: Palliative Care
Topics: Advance care planning Better communication Learning about dying
Province: Alberta, British Columbia, Manitoba, New Brunswick, Newfoundland and Labrador, Northwest Territories, Nova Scotia, Nunavut, Ontario, Prince Edward Island, Quebec, Saskatchewan, Yukon

The QPL is a list of questions designed to help the family carer in asking questions which may help them understand the process better. The QPL is a list of commonly asked questions that the family carers may wish to ask the internal facilitator during the FCC. This list is designed as a guide only and some questions may not be specific to all family carers, however it may be used as a guide of conversation for the family carer to ask questions that may not otherwise have crossed their minds, or in some cases may not be required at all. It is a companion to the Comfort Care Booklet.

Resource Types: Clinical form/process Informational Print Resource
Roles: Family/Caregiver Healthcare Provider
Toolkit: Palliative Care
Topics: Advance care planning Better communication Learning about dying
Province: Alberta, British Columbia, Manitoba, New Brunswick, Newfoundland and Labrador, Northwest Territories, Nova Scotia, Nunavut, Ontario, Prince Edward Island, Quebec, Saskatchewan, Yukon

Raison d’être de cette ressource : accroître l’assurance et les connaissances du personnel qui prend soin des résidants qui vivent et meurent dans des établissements de soins de longue durée.

Roles: Family/Caregiver Healthcare Provider
Topics: Advance care planning Bereavement Better communication Learning about dying

This guide is intended for caregivers of a person whose health has been severely affected by Alzheimer’s disease or by another type of degenerative disease of the brain, such as Parkinson’s disease, the effects of multiple strokes, or even certain forms of multiple sclerosis.

Resource Type: Informational Print Resource
Roles: Family/Caregiver Healthcare Provider
Toolkit: Palliative Care
Topics: Advance care planning Better communication Learning about dying
Province: Alberta, British Columbia, Manitoba, New Brunswick, Newfoundland and Labrador, Northwest Territories, Nova Scotia, Nunavut, Ontario, Prince Edward Island, Quebec, Yukon

Ce guide s’adresse aux proches aidants d’une personne dont l’état de santé s’est considérablement détérioré à cause de la maladie d’Alzheimer ou d’une autre maladie dégénérative du cerveau comme la maladie de Parkinson, les séquelles de multiples accidents vasculaires cérébraux ou même certaines formes de sclérose en plaques.

Resource Type: Informational Print Resource
Roles: Family/Caregiver Healthcare Provider
Toolkit: Palliative Care
Topics: Advance care planning Better communication Learning about dying
Province: Alberta, British Columbia, Manitoba, New Brunswick, Newfoundland and Labrador, Northwest Territories, Nova Scotia, Nunavut, Ontario, Prince Edward Island, Quebec, Saskatchewan, Yukon

This pamphlet was made to help persons with Heart Failure (HF) and their families know what to expect at the end of life so they can plan ahead.

Resource Type: Informational Print Resource
Roles: Family/Caregiver Healthcare Provider
Toolkit: Palliative Care
Topics: Learning about dying Learning about illness
Province: Alberta, British Columbia, Manitoba, New Brunswick, Newfoundland and Labrador, Northwest Territories, Nova Scotia, Nunavut, Ontario, Prince Edward Island, Quebec, Saskatchewan, Yukon

Ce dépliant a été conçu pour aider les personnes ayant une insuffisance cardiaque et leurs proches à connaître les étapes de fin de vie afin de mieux planifier les soins.

Resource Type: Informational Print Resource
Roles: Family/Caregiver Healthcare Provider
Toolkit: Palliative Care
Topics: Learning about dying Learning about illness
Province: Alberta, British Columbia, Manitoba, New Brunswick, Newfoundland and Labrador, Northwest Territories, Nova Scotia, Nunavut, Ontario, Prince Edward Island, Quebec, Saskatchewan, Yukon

This pamphlet was made to help persons with Advanced Frailty and their families know what to expect at the end of life so they can plan ahead.

Resource Type: Informational Print Resource
Roles: Family/Caregiver Healthcare Provider
Toolkit: Palliative Care
Topics: Learning about dying Learning about illness
Province: Alberta, British Columbia, Manitoba, New Brunswick, Newfoundland and Labrador, Northwest Territories, Nova Scotia, Nunavut, Ontario, Prince Edward Island, Quebec, Saskatchewan, Yukon

Ce dépliant a été conçu pour aider les personnes atteintes de fragilité et leurs proches à connaître les étapes de fin de vie afin de mieux planifier les soins.

Resource Type: Informational Print Resource
Roles: Family/Caregiver Healthcare Provider
Toolkit: Palliative Care
Topics: Learning about dying Learning about illness
Province: Alberta, British Columbia, Manitoba, New Brunswick, Newfoundland and Labrador, Northwest Territories, Nova Scotia, Nunavut, Ontario, Prince Edward Island, Quebec, Saskatchewan, Yukon

This pamphlet was made to help persons with Dementia and their families know what to expect at the end of life so they can plan ahead.

Resource Type: Informational Print Resource
Roles: Family/Caregiver Healthcare Provider
Toolkit: Palliative Care
Topics: Learning about dying Learning about illness
Province: Alberta, British Columbia, Manitoba, New Brunswick, Newfoundland and Labrador, Northwest Territories, Nova Scotia, Nunavut, Ontario, Prince Edward Island, Quebec, Saskatchewan, Yukon

Resource Type: Informational video
Roles: Family/Caregiver Healthcare Provider
Topics: Advance care planning Better communication Learning about dying Learning about illness
Province: Alberta, British Columbia, Manitoba, New Brunswick, Newfoundland and Labrador, Northwest Territories, Nova Scotia, Nunavut, Ontario, Prince Edward Island, Quebec, Saskatchewan, Yukon
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