What to expect at the end of life?
As a loved approaches their final days, it can be difficult to know what to expect. This video explores what family and staff can expect for their loved one at the end of life.
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A palliative approach in late stage dementia
This video explores why a palliative approach to care is particularly important for people with late stage dementia. Strengthening a palliative approach in long-term care, known as SPA-LTC, is about making sure that people with life-limiting illnesses have more opportunities to experience a high quality of life from the moment they enter long-term care to the day of their death.
Not Just a Visitor: The Essential Role of Family Members in Long-Term Care
A 20-minute video that explores the essential role of family caregivers in long-term care.
Palliative Care Conferences: Staff Planning Checklist
A Staff Planning Checklist to be referenced and completed before a palliative care conference.
Palliative Care Conference: Resident/SDM/Family Questionnaire
A questionnaire for Resident/SDM/Family members to complete before Palliative Care Conferences.
Palliative Care Conference Summary
A summary form to be used in Palliative Care Conferences
Learning about Dementia and Care near the End of Life: Asking questions of health care providers can sometimes be hard. Many of us simply do not know the questions we could be asking to help us better understand and plan for the future. This question prompt sheet has been designed to open up conversations between you, your family, and members of the health care staff. The answers to these questions may not be simple or straightforward; dementia affects each person in different ways.
Dr. Tamara Sussman contributes to this moving podcast about life in Quebec Long-Term Care during the COVID-19 pandemic lock-down.
After a stroke left him locked in his own body, Rabbi Ronnie Cahana has found ways to lead an incredibly full life. Then the pandemic came. It swept through Quebec, leaving a trail of devastation. Today, Rabbi Cahana is one of the thousands of Quebeckers left stranded in the middle of one of the worst disasters in modern Canadian history.
Navigating Stress & Loss as a Caregiver
Dr. Tamara Sussman explores “Navigating Stress and Loss when Caring for a Loved one with Dementia” with Claire Webster from McGill Cares. A 38 minute youtube video
Educational Resources – Communication and Advance Care Planning
A list of in-person and online courses about communication and advance care planning for healthcare professionals
Policy Template – Palliative and End-of-Life Program
This template can be adapted for policies about palliative and end-of-life programs in long-term care
Palliative Care Champion Team – Terms of Reference
The interprofessional palliative champion team is a key element necessary for the successful delivery of palliative care. This document can be adapted so that long-term care homes can create their own terms of reference for their palliative champion teams.
Educational Resources for Personal Support Workers
A list of educational resources that are specifically for personal support workers
Educational Resources – Pain Management
A list of online and in-person educational courses for healthcare professionals about pain management
Educational Resources for Long-Term Care Staff – Grief and Bereavement
A list of grief and bereavement education courses for healthcare professionals
Suggested wording for announcing a resident’s death
Finding a way to let other residents know of a resident’s passing can be difficult at times. Here are a few options for announcing a resident’s death that are respectful, honouring and focus on remembering lives lived.
Advance Care Planning Terminology- Provincial Chart
A chart that explains the different terminology for advance care planning by province.
A list of websites with Advance Care Planning resources
Reflective Debriefing: Supporting people and practice in long-term care
A video excerpt that outlines a reflective debriefing session to support people and practice in long-term care. The facilitator asks the staff to talk about what went well, what didn’t go so well, and what can be learned moving forward.
