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Asking questions of health care providers can sometimes be hard. Many of us simply do not know the questions we could be asking to help us better understand and plan for the future. This question prompt sheet has been designed to open up conversations between you, your family, and members of the health care staff. The answers to these questions may not be simple or straightforward; dementia affects each person in different ways.

Resource Type: Informational Print Resource
Role: Family/Caregiver
Topics: Advance care planning Bereavement Better communication Learning about dying Learning about illness Symptom management
Province: Alberta, British Columbia, Manitoba, New Brunswick, Newfoundland and Labrador, Northwest Territories, Nova Scotia, Nunavut, Ontario, Prince Edward Island, Quebec, Saskatchewan, Yukon

A summary form to be used in Palliative Care Conferences in Ontario

Resource Type: Clinical form/process
Role: Healthcare Provider
Toolkit: Palliative Care
Topics: Advance care planning Better communication Symptom management
Province: Ontario

A questionnaire for Resident/SDM/Family members to complete before Palliative Care Conferences.

Resource Type: Clinical form/process
Roles: Family/Caregiver Healthcare Provider
Toolkit: Palliative Care
Topics: Advance care planning Better communication Learning about dying Learning about illness Symptom management
Province: Alberta, British Columbia, Manitoba, New Brunswick, Newfoundland and Labrador, Northwest Territories, Nova Scotia, Nunavut, Ontario, Prince Edward Island, Quebec, Yukon

A 20-minute video that explores the essential role of family caregivers in long-term care.

Resource Type: Informational video
Role: Family/Caregiver
Toolkit: Palliative Care
Topic: Better communication
Province: Alberta, British Columbia, Manitoba, New Brunswick, Newfoundland and Labrador, Northwest Territories, Nova Scotia, Nunavut, Ontario, Prince Edward Island, Quebec, Saskatchewan, Yukon

This video explores why a palliative approach to care is particularly important for people with late stage dementia. Strengthening a palliative approach in long-term care, known as SPA-LTC, is about making sure that people with life-limiting illnesses have more opportunities to experience a high quality of life from the moment they enter long-term care to the day of their death.

Resource Type: Informational video
Role: Family/Caregiver
Topics: Advance care planning Learning about illness

As a loved approaches their final days, it can be difficult to know what to expect. This video explores what family and staff can expect for their loved one at the end of life.

Resource Type: Informational video
Role: Family/Caregiver
Toolkit: Palliative Care
Topics: Learning about dying Symptom management
Province: Alberta, British Columbia, Manitoba, New Brunswick, Newfoundland and Labrador, Northwest Territories, Nova Scotia, Nunavut, Ontario, Prince Edward Island, Quebec, Saskatchewan, Yukon

Resource Type: Informational Print Resource
Role: Family/Caregiver
Topics: Bereavement Learning about dying
Province: Alberta

Purpose of this resource: To increase the confidence and knowledge of staff caring for residents who are living and dying in Long-term Care.

Roles: Family/Caregiver Healthcare Provider
Topics: Advance care planning Bereavement Better communication Learning about dying
Province: Alberta, British Columbia, Manitoba, New Brunswick, Newfoundland and Labrador, Northwest Territories, Nova Scotia, Nunavut, Ontario, Prince Edward Island, Quebec, Saskatchewan, Yukon

The interprofessional palliative champion team is a key element necessary for the successful delivery of palliative care. This document can be adapted so that long-term care homes can create their own terms of reference for their palliative champion teams.

Resource Type: Clinical form/process
Role: Healthcare Provider
Toolkit: Palliative Care
Topic: Better communication
Province: Alberta, British Columbia, Manitoba, New Brunswick, Newfoundland and Labrador, Northwest Territories, Nova Scotia, Nunavut, Ontario, Prince Edward Island, Quebec, Saskatchewan, Yukon

Resource Type: Informational Print Resource
Role: Family/Caregiver
Topic: Bereavement
Province: Quebec
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