Advance care planning

“Now I don’t have to guess”: Using Pamphlets to encourage residents and families/friends to engage in advance care planning in long-term care

Advance care planning (ACP) helps individuals with progressive, life-limiting illnesses communicate their preferences for end-of-life (EOL) care to family members and healthcare providers. Despite known benefits, ACP is rarely utilized in LTC settings. To address the barriers of ACP in LTC, our team developed, implemented, and evaluated the effects of disease-specific illness trajectory pamphlets (ITPs) for five life-limiting advanced clinical syndromes of high prevalence in LTC: dementia, heart failure, COPD, renal failure, and frailty.

mySupport Study

This video explores the mySupport study which brings together an international team of healthcare researchers and clinicians to support healthcare staff to have end-of-life care discussions with family carers of people living with advanced dementia.

A palliative approach in late stage dementia

This video explores why a palliative approach to care is particularly important for people with late stage dementia. Strengthening a palliative approach in long-term care, known as SPA-LTC, is about making sure that people with life-limiting illnesses have more opportunities to experience a high quality of life from the moment they enter long-term care to the day of their death.

Question Prompt List

Learning about Dementia and Care near the End of Life: Asking questions of health care providers can sometimes be hard. Many of us simply do not know the questions we could be asking to help us better understand and plan for the future. This question prompt sheet has been designed to open up conversations between you, your family, and members of the health care staff. The answers to these questions may not be simple or straightforward; dementia affects each person in different ways.

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