Advance care planning

Question Prompt List

The QPL is a list of questions designed to help the family carer in asking questions which may help them understand the process better. The QPL is a list of commonly asked questions that the family carers may wish to ask the internal facilitator during the FCC. This list is designed as a guide only and some questions may not be specific to all family carers, however it may be used as a guide of conversation for the family carer to ask questions that may not otherwise have crossed their minds, or in some cases may not be required at all. It is a companion to the Comfort Care Booklet.

Comfort Care Booklet- French

Le message central du livret de soins de confort est que la démence est une maladie en phase terminale et qu’une approche palliative des soins est donc appropriée. Le livret fournit des informations sur la trajectoire de la maladie et les complications possibles, les options pour gérer des problèmes tels que les difficultés d’alimentation et la pneumonie, la gestion des symptômes et les soins de confort, le processus de prise de décision, le processus de la mort et le deuil.

Comfort Care Booklet- English

The core message of the Comfort Care Booklet is that dementia is a terminal disease and that a palliative approach to care is therefore appropriate. The booklet provides information about the trajectory of the disease and possible complications, options to manage issues such as feeding difficulties and pneumonia, symptom management and comfort care, the decision-making process, the dying process and grief.

“Now I don’t have to guess”: Using Pamphlets to encourage residents and families/friends to engage in advance care planning in long-term care

Advance care planning (ACP) helps individuals with progressive, life-limiting illnesses communicate their preferences for end-of-life (EOL) care to family members and healthcare providers. Despite known benefits, ACP is rarely utilized in LTC settings. To address the barriers of ACP in LTC, our team developed, implemented, and evaluated the effects of disease-specific illness trajectory pamphlets (ITPs) for five life-limiting advanced clinical syndromes of high prevalence in LTC: dementia, heart failure, COPD, renal failure, and frailty.

mySupport Study

This video explores the mySupport study which brings together an international team of healthcare researchers and clinicians to support healthcare staff to have end-of-life care discussions with family carers of people living with advanced dementia.

A palliative approach in late stage dementia

This video explores why a palliative approach to care is particularly important for people with late stage dementia. Strengthening a palliative approach in long-term care, known as SPA-LTC, is about making sure that people with life-limiting illnesses have more opportunities to experience a high quality of life from the moment they enter long-term care to the day of their death.

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