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This study explores the development and use of five condition specific pamphlets aimed at supporting LTC staffs' capacity to (a) inform residents and families about the trajectory of their primary medical condition and (b) initiate conversations about EOL care.
The purpose of this sub-study is to examine FCC: a) content, and b) guiding processes such as documentation and multidisciplinary staff participation using mixed methods.
The goal of this study was to examine how palliative care principles (PCP) can best be integrated in LTC is a pressing issue by exploring the tensions associated with caring for the living and dying within one care community and informing how PCP may be improved.
CONFÉRENCE POUR LES PROCHES AIDANTS LISTE DE QUESTIONS INCITATIVES Après avoir examiné le Guide de soins de confort, vous aurez peut-être des questions à poser lors de la Conférence pour les proches aidants qui suivra. Cochez les questions ci-dessous que vous souhaiteriez poser et n’hésitez pas à noter vos propres questions dans le Questionnaire du proche aidant principal ci-inclus avant la conférence.
The QPL is a list of questions designed to help the family carer in asking questions which may help them understand the process better. The QPL is a list of commonly asked questions that the family carers may wish to ask the internal facilitator during the FCC. This list is designed as a guide only and some questions may not be specific to all family carers, however it may be used as a guide of conversation for the family carer to ask questions that may not otherwise have crossed their minds, or in some cases may not be required at all. It is a companion to the Comfort Care Booklet.
Raison d’être de cette ressource : accroître l’assurance et les connaissances du personnel qui prend soin des résidants qui vivent et meurent dans des établissements de soins de longue durée.
This guide is intended for caregivers of a person whose health has been severely affected by Alzheimer’s disease or by another type of degenerative disease of the brain, such as Parkinson’s disease, the effects of multiple strokes, or even certain forms of multiple sclerosis.
Advance care planning (ACP) helps individuals with progressive, life-limiting illnesses communicate their preferences for end-of-life (EOL) care to family members and healthcare providers. Despite known benefits, ACP is rarely utilized in LTC settings. To address the barriers of ACP in LTC, our team developed, implemented, and evaluated the effects of disease-specific illness trajectory pamphlets (ITPs) for five life-limiting advanced clinical syndromes of high prevalence in LTC: dementia, heart failure, COPD, renal failure, and frailty.
Ce guide s’adresse aux proches aidants d’une personne dont l’état de santé s’est considérablement détérioré à cause de la maladie d’Alzheimer ou d’une autre maladie dégénérative du cerveau comme la maladie de Parkinson, les séquelles de multiples accidents vasculaires cérébraux ou même certaines formes de sclérose en plaques.
This pamphlet was made to help persons with Heart Failure (HF) and their families know what to expect at the end of life so they can plan ahead.
Ce dépliant a été conçu pour aider les personnes ayant une insuffisance cardiaque et leurs proches à connaître les étapes de fin de vie afin de mieux planifier les soins.
This pamphlet was made to help persons with Advanced Frailty and their families know what to expect at the end of life so they can plan ahead.
Ce dépliant a été conçu pour aider les personnes atteintes de fragilité et leurs proches à connaître les étapes de fin de vie afin de mieux planifier les soins.
This pamphlet was made to help persons with Dementia and their families know what to expect at the end of life so they can plan ahead.
Ce dépliant a été conçu pour aider les personnes atteintes de troubles cognitifs et leurs proches à connaître les étapes de fin de vie afin de mieux planifier les soins.
This pamphlet was made to help persons with Advanced Kidney Disease (AKD) and their families know what to expect at the end of life so they can plan ahead.
Ce dépliant a été conçu pour aider les personnes ayant une insuffisance rénale chronique et leurs proches à connaître les étapes de fin de vie afin de mieux planifier les soins.
This research brief explores the EOL care and bereavement needs of family members whose loved ones have recently died in a LTC home.
