Status:
Completed
Purpose:
To support care home staff to engage in decision-making with family carers: scaling up an educational intervention called the Family Carer Decision Support
Setting:
Long-term care homes in Canada, Czech Republic, Ireland, Italy, the Netherlands and the United Kingdom.
EU Joint Programme – Neurodegenerative Disease Research and the Canadian Institutes for Health Research (2019-2022)
Bavelaar L, Visser M, Walshe C, Preston N, Kaasalainen S, Sussman T, Cornally N, Hartigan I, Loucka M, di Giulio P, Brazil K, Achterberg WP, van der Steen JT (2023). The impact of the mySupport advance care planning intervention on family caregivers’ perceptions of decision-making and care for nursing home residents with dementia: pretest-posttest study in six countries. Age and Ageing, 52(3), afad027. https://doi.org/10.1093/ageing/afad027
Lucchese S, Yous ML, Kruizinga J, Vellani S, Rivas VM, Tétrault B, Holliday P, Geoghegan C, Just D, Sussman T, Ganann R, Kaasalainen, S. (2024). Motivations of family advisors in engaging in research to improve a palliative approach to care for persons living with dementia: an interpretive descriptive study. Research Involvement and Engagement, 10(1), 94. https://doi.org/10.1186/s40900-024-00623-w
Vellani S, Yous ML, Rivas VM, Lucchese S, Kruizinga J, Sussman T, Abelson J, Akhtar-Danesh N, Bravo G, Brazil K, Ganann R, Kaasalainen S. (2024). Patient and public involvement in international research: Perspectives of a team of researchers from six countries on collaborating with people with lived experiences of dementia and end-of-life. Health Expectations: An International Journal of Public Participation in Health Care and Health Policy, 27(1), e13942. https://doi.org/10.1111/hex.13942
Hartigan I, Buckley C, Cornally N, Brazil K, Doherty J, Walshe C, Harding AJE, Preston N, Bavelaar L, van der Steen JT, Di Giulio P, Gonella S, Kaasalainen S, Sussman T, Tétrault B, Loučka M, Vlčkovà K, Gonzales RA, mySupport study group. (2025). EMTreK model for advance care planning in long-term care: Qualitative findings from mySupport study. Geriatrics, 10, 171, https://doi.org/10.3390/geriatrics10060171.
Bavelaar L, McCann A, Cornally N, Hartigan I, Kaasalainen S, Vankova H, Di Giulio P, Volicer L, Arcand M, van der Steen JT, Brazil K, my Support study group. (2022). Guidance for family about comfort care in dementia: A comparison of an educational booklet adopted in six jurisdictions over a 15 year timespan. BMC Palliative Care, 21, 76. https://doi.org/10.1186/s12904-022-00962-z
Harding AJE, Doherty J, Bavelaar L, Walshe C, Preston N, Kaasalainen S, Sussman T, van der Steen JT, Cornally N, Hartigan I, Loucka M, Vlckova K, Di Giulio P, Gonella S, Brazil K, mySupport study group. (20220). A family carer decision support intervention for people with advanced dementia residing in a nursing home: A study protocol for an international advance care planning intervention (mySupport study). BMC Geriatrics, 22, 822. doi: https://doi.org/10.1186/s12877-022-03533-2